Behind every policy is a patient, caregiver, or family whose story helped make change possible.
In this episode, we speak with Andrea Sanchez and Becki Chandler, volunteer advocates with Blood Cancer United, about the power of patient voices in shaping public policy. Drawing from their own family experiences with blood cancer, they discuss issues ranging from medical debt and insurance coverage to clinical trial access and research funding and explain how patients and caregivers can make their voices heard.
Learn why sharing your story matters and how personal experiences help lawmakers see that patients are more than numbers on a page. Behind every statistic is a real person, a unique story, and a family impacted by blood cancer.
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CLICK HERE to participate in our episode survey.Mentioned on this episode:
- Blood Cancer United Advocacy and Office of Public Policy – sign up for volunteer advocacy or sharing your voice here
- Medical Debt Case Management Program
- Financial support
- Accelerating Kids Access to Care Act
- Dare to Dream
- Blood Cancer United Scholarship program
- Blood Cancer Care Close to Home vlog episode
- National Institutes of Health (NIH)
- Advocating for Yourself: Insurance, Finances, and Your Rights podcast episode
Additional Blood Cancer United Support Resources:
- Information Specialists
- Clinical Trial Support Center
- Young Adult Resources
- Young Adult Online Chat
- Free Nutrition Consultations
- Free telephone/web patient programs
- SHARE web series
- Online videos
- Free booklets
- Patient Community
- Caregiver support
- Caregiver Workbook
- Support groups
- Survivorship Workbook
- Mental Health Resources