Join us as we speak to Laurie Adami, a follicular lymphoma (non-Hodgkin lymphoma) survivor. In this episode, Laurie shares her long journey through multiple cancer treatments, which eventually led to CAR T-cell therapy and complete remission.
Hear one patient’s story of hope, as new treatments continued to come out, keeping her stable until the one that finally worked was approved for her disease. Her story of resilience and determination to stay alive for her young son is the inspiration that so many blood cancer patients need.
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CLICK HERE to participate in our episode survey.Mentioned on this episode:
- Follicular Lymphoma
- CAR T-cell Therapy
- Sjorgren’s Syndrome
- Patti Robinson Kaufmann First Connection Program
- Allogeneic Stem Cell Transplant
- Graft-Vs-Host Disease (GVHD)
- LLS Public Policy & Advocacy
- Light The Night
- Woman of The Year (Visionaries of the Year)
- Student of The Year
- Team In Training
Additional LLS Support Resources:
- Information Specialists
- Financial support
- Free telephone/web patient programs
- Free booklets
- Clinical Trial Support Center
- LLS Community
- Online chats
- Support groups
- Caregiver support
- Caregiver Workbook
- Free Nutrition Consultations
- LLS Advocacy
- Survivorship Workbook
Support for this episode provided by: Allogene Therapeutics; Bristol Myers Squibb; CRISPR Therapeutics; Janssen Oncology & Legend Biotech; Kite, A Gilead Company; Novartis Oncology.
Excellent way of explaining such a difficult to understand biology.
As a clinical nurse and faculty specialized in hematology and CAR-T cells, I appreciate this educational activities for patients and communities.
Great episode, I related so well to Laurie’s journey as we have so much in common in our medical past. I like how she gave such a detailed account of both the positive and negative (sharing what worked and what did not and how it affected her). I have had a Car-T cell transplant and unfortunately for me it was unsuccessful but I had a tough time with the side effects and I wondered how Laurie faired in that regard.
Anyway, as always LLS is providing great real-world information and the research behind it. Thank you!
Really enjoyed listening to her story!! Great insight on why we should advocate for ourselves!
I enjoyed listening to your story. It was very helpful to me. Can you tell me how can I found out is Car T-Cell Therapy is available in New York City for Hodgkin Lymphoma stage 2 cancer.
Thank you for time
Hi Percolia,
We encourage you to contact our Information Specialists at 1-800-955-4572 or go to LLS.org/ContactUs. They will be able to help you find treatments or clinical trials for your lymphoma.