In its early stages, cutaneous t-cell lymphoma (CTCL) may be mistaken for a skin condition like eczema. Many people have a hard time grasping how something that arises in the skin is actually considered a blood cancer. Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Dr. Jasmine Zain, hematologist/oncologist at City of Hope in Duarte, CA, about how CTCL is not just one disease, how CTCL is diagnosed and treated, why dermatologists may be part of a person’s treatment team, the prevalence of CTCL within certain geographies and ethnicities, stem cell transplants, the role of clinical trials and the importance of a team approach when determining the best treatment options. Dr. Jasmine Zain also explains how people can live their normal lives despite their CTCL diagnosis.
Mentioned on this episode:
- Cutaneous T-cell Lymphoma Facts Sheet
- Clinical Trials
- Printable Question Guide to Ask Your Healthcare Team
- Cutaneous Lymphoma Foundation
- LLS Community
- Lymphoma Research Foundation
- BMT Infonet: Blood & Marrow Transplant Information Network
Support for this episode provided by Seattle Genetics.
Additional LLS Support Resources:
- Information Specialists
- Free telephone/web patient programs
- Free booklets
- Financial support
- Online chats
- Caregiver support
- LLS Community
- Support groups
- Patti Robinson Kaufmann First Connection Program
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