Join us as we speak to lymphoma patient, Leona, her husband and caregiver, Howell, and Tia Newcomer, the CEO of CaringBridge®. In this episode, Leona and Howell discuss the benefits of utilizing patient and caregiver support resources like the online journaling site, CaringBridge, to communicate with loved ones after Leona’s diagnosis. They were comforted that the site also afforded the opportunity for family members and friends to engage and give them support.
Tia then shares the mission of CaringBridge and how it has evolved into a community of over one million pages where patients and caregivers communicate their updates and needs with family members from diagnosis through survivorship.
Podcast: Play in new window | Download
Subscribe: Google Podcasts | Spotify | Stitcher | Blubrry | JioSaavn | TuneIn | RSS | MoreCLICK HERE to participate in our episode survey.
Mentioned on this episode:
- Diffuse Large B Lymphoma
- Write for Life: Persisting in Online Health Communities through Expressive Writing and Social Support
- Caregiver support
- Caregiver Workbook
Additional LLS Support Resources:
Information very helpful thanks for this video. I’m a patient and getting ready for stem cell soon January 2023 I’m a widow with a 18 year son that’s been my caregiver threw treatments i would really like more support and videos..very little family a brother and a sister both live far away from me out of state. It’s very hard alone in this journey and asking for help.
Thank you for sharing your story. We encourage you and your son to visit LLS.org/Caregiver for more resources. He can also call our Informational Specialists at 800-955-4572 for more support.
Caring Bridge is a wonderful tool to help families is crisis. I know from experience the support my family received when my grandson became ill. Family and friends could be updated without making constant phone call.
It was truly a blessing.