Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with patients and survivors about what the word, “survivorship” means to them.
We found the responses to this question can vary from patient to patient and even change once treatment ends. We hope that through their words, listeners will find a sense of connection and evaluate their own meaning of survivorship.
Be sure to stay tuned for the next episode from CancerCon, where we will be hearing from experts who presented on various aspects of survivorship, such as the growth mindset, creating a survivorship plan, and imposter syndrome.*NOTE: For the safety of all participants, masks were required at all times during the conference. All cancer patients and survivors were encouraged to speak to their doctor prior to participating.
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Mentioned on this episode:
- Survivorship Definition – National Cancer Institute
- Survivorship Workbook
- Young Adult Online Chat
- Stupid Cancer
- LLS Dare to Dream
- Stem Cell Transplant
- Be The Match
- Armenian Bone Marrow Registry
Additional LLS Support Resources:
Interesting perspective to hear from young people. Me…I was Dx’d at 57 with CML and my world was rocked a year later with ALL. I’m thinking my body just couldn’t bounce back as a young adults. Survivorship should definitely be emphasized more.
I’m a cancer survivor I had h lymphoma 2016 I always say “you live day by day you don’t know how you wanna feel when you wake up but you have God on your side to help you through it they never told you how are you gonna feel when you’re in a mission but I am truly blessed to be here
It was interesting listening to the various comments from younger people. I was diagnosed at age 64 and I’m currently 72 years old following a stem cell transplant for multiple myeloma.
I think the hardest part for me is that once you are through the stem cell transplant, all the support and everyone who helped and came to visit just kind of disappear. And because I look well now, people don’t consider that I’m still facing a basically incurable disease which brings about its own challenges.
Many times I also feel that, who am I to complain, when people are diagnosed at such a young age and have their whole lives before them? But I would like to think and feel that my experience with cancer has made me a better person in some ways: definitely more spiritual, and hopefully a more giving and loving person who appreciates every sunrise and all the blessings that God bestows on us every day.
Fabulous broadcast. What an amazing group of young people. My first time hearing about Cancer Con and a survivor plan. I would love to hear how nurses during treatment were helpful or not helpful.