Join us as we speak with Donnie Hill, a chronic lymphocytic leukemia (CLL) / small cell lymphocytic lymphoma (SLL) patient and his doctor, James Essell, MD, of Oncology Hematology Care, Inc. in Cincinnati, OH. In this episode, Donnie and Dr. Essell discuss the importance of shared decision making (SDM) and how they worked together to determine the best treatment course for Donnie’s CLL/SLL. Shared decision making is a key component of patient-centered healthcare that balances risks and expected outcomes with patient preferences and values. Be sure to tune into this real-world example of how SDM works and how patients can have open communication with their healthcare team.
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Mentioned on this episode:
- Chronic Lymphocytic Leukemia (CLL)
- Small Cell Lymphocytic Lymphoma (SLL)
- Shared Decision Making Fact Sheet
- Shared Decision Making in Chronic Leukemias immersive program
- Anxiety and Hope: Living with Chronic Lymphocytic Leukemia (CLL) podcast episode
- Minimal/Measurable Residual Disease
- Information Specialists
Additional LLS Support Resources:
- Free telephone/web patient programs
- Clinical Trial Support Center
- Free booklets
- Financial support
- Online chats
- Caregiver support
- LLS Community
- Support groups
- Free Nutrition Consultations
- LLS Advocacy
- LLS Myeloma Link
Support for this episode provided by AbbVie Inc. and Genentech, A Member of the Roche Group.
Great information. Love the content. Realized the importance of integrating process of shared decision
making in so may areas of interacting i successful treatment. Very relatable & humanizing to witness
the conversation with Dr. Essell & Mr. Hill.
Thank you, Matilda,
We hope you also take advantage of the immersive SDM program listed in the show notes. This “choose your own journey” program will walk you through a patient scenario for another opportunity to learn effective ways of communicating with your doctor and working together.
Does Waldenstrom’s fall within the category of small cell or chronic lymphocytic leukemia? How would I benefit from listening to this podcast?
Waldenstrom’s is in the category of indolent NHL types. However, the process of Shared Decision Making is good for patients with all diagnoses. While this podcast episode features a CLL patient, he speaks about how he communicated with his doctor and how they worked together to choose the treatment that was best for him.
So much, many good facts. I like the facts, just the facts! Thank yal for putting this out here for learning about options, successes!!
Thank you so much it very informative for me
Reading the transcript from this pod cast was very useful.
I was diagnosed January 12, 2022 with MCL after a routine colonoscopy. I had have no symptoms, have scored low risk and am watching and waiting. I am 72 in excellent health. I have always vigorously exercised and live a very active life. I am soon returning home from a 10 week trip with plans to have a second opinion on diagnosis, prognosis and treatment. Treatment proposed is B&R. I have utilized many sources of information from LLS. I am still assembling my team. I have lots of questions.
Thank you for directing me to this program. I expect to decide my plan after considerable study, advice, and reflection. I have a lot to give back to society. This will drive my desire and keep me on track. Now I know I am not alone in how to proceed, how to set goals and continue to live my life after MCL.
We are so happy to hear that the Shared Decision Making podcast helped you. We do have two MCL episodes launching in May, so stay tuned!