Join us as we speak with David Wallace, a polycythemia vera (PV) patient and advocate. In this episode, David shares how he struggled to get his diagnosis, advocated to get the treatment he needed, and finally how he found a specialist that was able to treat his PV. He used his struggles to create the website, PV Reporter and nonprofit, MPN Cancer Connection, to educate patients about their disease, help them find resources, and increase awareness of MPNs. David encourages all patients to become their own advocates and to actively participate in their cancer journey.
Mentioned on this episode:
Additional LLS Support Resources:
- Information Specialists
- Clinical Trial Support Center
- Free telephone/web patient programs
- Free booklets
- Financial support
- Online chats
- Caregiver support
- LLS Community
- Support groups
- Patti Robinson Kaufmann First Connection Program
- Free Nutrition Consultations
Support for this episode provided by Incyte.