Join us as we speak with Jan White, a survivor and thriver of Stage IV Non-Hodgkin Lymphoma. In this episode, Jan shares her story of how she went from facing immediate paralysis and death to using her experience to advocate for patients. She became a legislative advocate for LLS, started a website to share her experience, and has participated in numerous national conferences in support of cancer patients and healthcare access.
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CLICK HERE to participate in our episode survey.Mentioned on this episode:
- Non-Hodgkin Lymphoma
- Diffuse Large B-Cell Lymphoma
- Mental Health Resources
- Jan Says Onward
- One More -Ologist Blog Post
- LLS Advocacy
- Join Mobile Action Network: Click Link or Text SPEAK to 69866
Additional LLS Support Resources:
- Information Specialists
- Clinical Trial Support Center
- Free telephone/web patient programs
- Free booklets
- Financial support
- Online chats
- Caregiver support
- LLS Community
- Support groups
- Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations
Support for this episode provided by Epizyme, Karyopharm Therapeutics and Pharmacyclics & Janssen Biotech.
Thanks so much for your work to help bring an end to blood cancer. I too am a survivor: Myelomonocytic Leukemia, Non-Hodgkin’s Lymphoma and T-Cell Large Granular Lymphocytic Leukemia (which I currently have as of 2015).
The after effects, especially after NHL have kept my weight below normal and my new normal for counts are about 25%-30% below normal. But, I’m quite alive and able to work which I must after having lost all our savings to all of the above.
I have poorly written a book about my voyage. Much of the them of this work mirrors o a sea voyage. I am a former boat delivery captain and have been designing boats since for more than forty years.
Keep up your great work; every effort helps. All the best, Rob
Can I participate now?
Hi Joyce,
Yes! If you are looking to become an LLS Advocacy volunteer, visit http://www.LLS.org/Advocacy to see all the ways to get involved. Thank you!
I am also a Survivor diffuse large B-Cell Lymphoma Non Hodgkin stage 4 but just happy I am a live, God love me ,
I am scare to go back to work like normal life after six months Chemo i am like missing something i don’t know what it is
Hi RoseMarie!
We are so happy to hear that you are 6 months out of chemo! To help you through survivorship, LLS has many resources available to you. You can visit http://www.LLS.org/PatientSupport to view many of our resources, including returning to work after cancer. Or you can call our Information Specialists at 1-800-955-4572 for more assistance on survivorship. If you would like to get involved as a volunteer, you can go to http://www.LLS.org/volunteer. This can include getting involved in our community events like Light The Night, Team in Training and more. We hope this helps as you navigate survivorship!