Ola Ojewumi
Join us as we speak to Ola Ojewumi, a patient and health advocate with Post-Transplant Lymphoproliferative Disorder (PTLD), a type of Non-Hodgkin Lymphoma. In this episode, Ola tells us about the difficulties she has faced as a Black disabled woman with chronic pain. She shares her experiences with racism and inequities in healthcare and how she has learned to advocate for herself and others.
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CLICK HERE to participate in our episode survey.Mentioned on this episode:
- Post-Transplant Lymphoproliferative Disorder (PTLD)
- LLS Health Manager App
- Racial Bias in Chronic Pain Study
- Ola Speaking to Congress
- Project ASCEND
- #PatientsAreNotFaking
Additional LLS Support Resources:
A sobering reminder of my privilege. With everything else a cancer diagnosis brings, concern about whether your treatment is being influenced by implicit bias is just not a burden any patient needs. The fact that I cannot imagine that concern tells me that I need to listen to and believe what people of color are saying. I hold Ola in my heart and will be vigilant to this kind of bias if I notice it in treatment settings. I am so grateful for her generosity in sharing what is clearly a painful experience, Implicit bias is everywhere in our lives.