Don’t miss this story of a patient who refuses to let cancer define his life.
Join us as we speak to Bruce Rieder, who was diagnosed in 2019 with mantle cell lymphoma (MCL), a type of non-Hodgkin lymphoma. In this episode, Bruce shares about his diagnosis and subsequent search for a clinical trial. He connected with the LLS Clinical Trial Support Center, sought out a second opinion and ended up with a specialist in a nearby cancer center. He received a stem cell transplant in February 2020, right before the world shut down due to COVID.
Now, two years after his transplant, Bruce stays active in the LLS Community and has received support from the Patti Robinson Kauffman First Connection® program.
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CLICK HERE to participate in our episode survey.Mentioned on this episode:
- Mantle Cell Lymphoma
- Mantle Cell Lymphoma (MCL) Part One: Treatment Advances episode
- Mantle Cell Lymphoma (MCL) Part Two: CAR T-Cell Therapy episode
- Stem Cell Transplant
- Non-Hodgkin Lymphoma
- COVID Information
- Patti Robinson Kaufmann First Connection Program
- Clinical Trial Support Center
- LLS Community
Additional LLS Support Resources:
- Information Specialists
- Financial support
- Free telephone/web patient programs
- Free booklets
- LLS Public Policy & Advocacy
- Online chats
- Caregiver support
- Support groups
- Free Nutrition Consultations
- LLS Advocacy
- Survivorship Workbook
Support for this episode provided by Bristol Myers Squibb, Eli Lilly and Company, Genentech, Inc. & Biogen, and Merck & Co., Inc.
I enjoyed the supportive commentary from someone else with mantle cell lymphoma.
Thank you.
I read several studies about Mosentuzumab. But it has not yet been approved by FDA. Do you have idea when this might happen? It had a huge response among relapsed patients with follicular lymphoma.
Hi Ann,
We recommend contacting our Information Specialists at 1-800-955-4572. They stay up to date with approvals and would be able to give you information abotu that treatment. Thank you for listening!
Lymphoma does not define me either. I worked full time until this past April and am 76.. Since stage 4 NHL 2008, I also did a lot of swimming of laps at miles at a mile a day. I had 14 great yrs till I relapsed this yr. My biopsy this yr showed follicular ( treated for that before), also Marginal zone cells and Kappa refractor cells. All 3?
Hi Linda,
We are so happy to hear that cancer doesn’t define your life. We encourage you to contact our Information Specialists at 1-800-955-4572. They can discuss your disease and help you to understand the information that was shown in the biopsy. Thank you for listening. We hope the podcast episode helped you.
Did you have any side effects??
If so was were the worst parts of the treatment
Hi very informative. My story mirrors Bruce almost to the day. My MCL was detected in August 2019, my Stem Cell Transplant was In May 2020 because it was delayed from the overcrowded hospital rooms of Covid patients.
I am also still getting Retuxib maintenance treatments along with Immunotherapy. Lastly I did contact Covid in September but after having Paxlovid regiment I felt immediately better and tested negative after 5 days. I guys my vaccinations and boosters helped.
I agree Cancer doesn’t define me!