Howard Willens
Please join us as we speak to Howard Willens, a chronic myelomonocytic leukemia (CMML) patient. In this episode, Howard shares how he was diagnosed with this rare blood cancer. He shares how patient support groups have assisted him, and how he no longer feels alone. His story encourages CMML patients to focus on stability and the present, while living their lives to the fullest.
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CLICK HERE to participate in our episode survey.Mentioned on this episode:
- Chronic Myelomonocytic Leukemia (CMML)
- CMML Fact Sheet
- Stem Cell Transplant
- Myelodysplastic Syndromes (MDS)
- Myeloproliferative Neoplasms (MPNs)
- Mental Health Resources
- LLS Community
- CMML Friends on Facebook
Additional LLS Support Resources:
- Information Specialists
- Financial support
- Free telephone/web patient programs
- Patti Robinson Kaufmann First Connection Program
- Free booklets
- LLS Public Policy & Advocacy
- Clinical Trial Support Center
- Online chats
- Caregiver support
- Support groups
- Free Nutrition Consultations
- LLS Advocacy
- Survivorship Workbook
Support for this episode provided by Taiho Oncology.
How do I join the rare leukemia group
Hi Rita,
You can join this group through our LLS Community. Sign up for free to be part of the community at LLS.org/Community and then search for the rare leukemia group.
Thank you for this conversation. I appreciate the Doctor’s candid answers about his journey with CMML.
Any new treatments available?
Hello Bill,
We encourage you to contact our Information Specialists at 1-800-955-4572. They can help you find the newest treatments for CMML and also connect you with the Clinical Trial Support Center (http://www.LLS.org/CTSC) to see if there are any clinical trials available for you.
Hello. I am 56 yes and just been diagnosed with CMML. I’m waiting on the results of genetic tests to determine treatment plan and prognosis.
I’m interested to know how long people have been living with CMML and had anyone had experience with the treatment azacytidine?
Hello Julie,
We recommend you joining the rare leukemias group on LLS Community. You should be able to find others with CMML there, including our podcast guest, Howard.