Join us in this next installment of our series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. In this episode, we speak to Dr. Larry Saltzman, a Chronic Lymphocytic Leukemia (CLL) survivor and physician researcher and Dr. Steven Coutre from Stanford Medicine. Dr. Larry shares his experience living with CLL, participating in LLS Team In Training events, and his current work with LLS studying patient outcomes and COVID-19 vaccine antibody response. Dr. Coutre then delves deeper into CLL treatments, responses to vaccines and what is on the horizon for new treatments and clinical trials.
*Please note that this episode was recorded prior to the rise of the COVID Delta variant and release of booster shots. We encourage patients to consult with your physician regarding COVID-19 safety and vaccines. Preliminary results have also been released for the antibody study and can be found in the show notes below.
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CLICK HERE to participate in our episode survey.Mentioned on this episode:
- Chronic Lymphocytic Leukemia (CLL)
- Small Cell Lymphocytic Lymphoma (SLL)
- CAR T-cell Therapy
- Minimal Residual Disease
- Team In Training
- Financial support
- Clinical Trial Support Center
- LLS Patient Registry
- Vaccines for Blood Cancer Patients
- LLS COVID-19 Antibody Research Study: Your Questions Answered
Additional LLS Support Resources:
- Information Specialists
- Free telephone/web patient programs
- Free booklets
- Online chats
- Caregiver support
- LLS Community
- Support groups
- Patti Robinson Kaufmann First Connection Program
- Free Nutrition Consultations
Support for this episode provided by Genentech, Inc. & Biogen and Pharmacyclics, An AbbVie Company & Janssen Biotech.
This was an excellent source of information and advice. I was diagnosed with CLL in July of 2008 and have been a patient of DR Thomas Kipps at the UCSD Moores Cancer Center. As yet I’ve not undergone treatment. I ran seven San Diego Rock’n’Roll half marathons from 2013-2018 and raised over $100,000 for There Leukemia & Lymphoma Society. I am grateful for the effort put forth by LLS to advance blood cancer research and to help blood cancer patients and their families.
Hi John,
Thank you for all you have done for LLS and blood cancer patients. We appreciate you!
Good afternoon, I just listened to this seminar. Dr. Saltzman mentioned he just traveled to Seattle. I am considering traveling to Portland, Oregon in September (I too live in Sacramento). I am vaccinated and
plan to get the booster shot prior to any travel. I am a CLL patient in a watch and wait period. I was originally diagnosed in mid 2015. Please advise on any special precautions you made when you traveled to Seattle. Also, should I get a N95 mask, if possible prior to any travel plans? Thank you for any input.
Hi Paul,
Thank you for listening and for your comment. Dr. Larry will be responding privately by email to answer your questions.
This helped me a great deal I am on watch and wait for 5 years. I am getting close to treatment . I live in Lincoln Nebraska.
I’m part of CLL.org data and have given blood test after my 2 shots of Covid. I was told I have antibodies but as mentioned in this recording, they don’t know what level is what percent protection. I have now got my third shot and presume it will increase my antibodies. I have to live life and am going out, but still wear the mask and don’t travel. Looking forward to CLL.org asking for another blood test and seeing what my new antibodies increase is and what % perfection they decide that is.
Hi Jerry,
Thank you for listening. We are so happy to hear that you have antibodies! If you haven’t yet, we encourage you to watch Dr. Saltzman’s presentation on the LLS Antibody study. A booster update will also be available soon. https://lls.org/professional-education-webcasts/lls-covid-19-antibody-research-study-your-questions-answered.