Join us as we start a brand new series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. In this episode, we speak to Ashley Cámara, a Myelodysplastic Syndromes (MDS) survivor and advocate and Dr. Lucy Godley from The University of Chicago Medicine. Ashley shares her story of having two MDS diagnoses in her family – first her brother and then herself. Dr. Godley then delves deeper into inherited myeloid malignancies and how genetic links may lead to preventative treatment options.
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CLICK HERE to participate in our episode survey.Mentioned on this episode:
- Myelodysplastic Sydromes (MDS)
- Stem Cell Transplantation
- Hereditary Myeloid Malignancies – University of Chicago Medicine
- Dr. Lucy Godly Contact
- Young Adult Resources
Additional LLS Support Resources:
- Information Specialists
- Free telephone/web patient programs
- Free booklets
- Financial support
- Online chats
- Caregiver support
- LLS Community
- Support groups
- Patti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations
Support for this episode provided by Taiho Oncology.